
My 1000th post - wow!!!! I've been trying to think of something special to do - something profound to say - for the last several months as I've been watching my posts count up to this milestone. Unfortunately I don't seem to have an epiphany of anything amazing and special to do to mark this momentous celebration of my verboseness....
I started this blog 4ish years ago as a journal and an information source for people searching for answers to what having a child with Down Syndrome is really like. There are so many families who get the diagnosis of Trisomy 21 from prenatal testing or at birth who have no idea what having a child with down syndrome will really be like. They get that dx and it throws them for a loop and they aren't sure where to turn - but if they're like me - they turned to the internet. And - what a treasure of information the internet is on Trisomy 21 - good information, and not so good information - but information just the same -and a life line for people struggling and grieving with the fact that their baby is - well - different. I wanted to be able to show people who, while silently grieving, were making decisions about their babies, and I wanted to document and chronicle our journey as a family, of our life as Brady's Bunch.
It hasn't all been roses - our journey.... It's been an adventure with ups and downs, days that I've struggled with the things that come with Down Syndrome - but not with Brady himself, if that makes sense. Sometimes I struggle with his diagnosis, but I would never trade him, or the things that he has taught me, or the person he has helped me become, for anything in the world.
Most of our struggles come from outside influences - a society who doesn't understand, who sees Brady as "broken" or "defective", a school district that values children with cognitive disabilities less than typical children - and offers them an education that is substandard and is not willing/unable to fund programs/supports to make meaningful inclusion possible, teachers who have underestimated Brady's abilities and were unwilling to make the modifications and adaptations needed to help him learn and succeed, a medical community that sometimes offers the cop-out of "it's just down syndrome" there's nothing else going on/that we can do - or question my concerns when I voice them.
But - the negative things - the struggles are far surpassed in both quantity and quality by the positive effects of having Brady in our lives. If I had enough time, and brain power, I could probably list 1,000 things that Brady has taught me - but I guess you'll have to settle for a tenth of that ;)
So - to celebrate my 1000th post, and our journey as Brady's Bunch- here are 100 things/ways that Brady has taught us/influenced our lives.....
1. babies with down syndrome are sooooo cute!!!!
2. hypotonia makes for the best snuggles!
3. babies with down syndrome do stay babies a little longer - some people see that as something negative - that was a positive for us - newborns are my favorite - and I got to enjoy that a little bit longer with my cute boy!
4. babies with down syndrome meet the same developmental milestones as typical kids - sometimes in they typical time frame, and sometimes not!
5. signing is an awesome way to communicate with babies and kids!
6. I can do more than I think I can.
7. I can adjust to changes in my life - and sometimes having your life all planned out is overrated :)
8. I can do hard things - like advocate for my child, and take on nay-sayers :)
9. running water IS soothing and interesting the way it moves through your fingers and sprays everything when you plug the faucet with your hand.
10. the smiles of people with down syndrome are brighter than the sun, and having one turned on you, makes your day.
11. joy in the simple things.
12. that there IS time to stop and watch the ants crawl, notice the bugs in the grass, and lay on the trampoline and watch the clouds go by.
13. I love you is the sweetest sentence ever spoken.
14. you just might be sad when the words you've been working on for months pronounce correctly finally do get pronounced right, and you miss the "wrong" way....
15. that there is no such thing as "normal".
16. that most little kids are more tolerant and patient than you give them credit for - and that their prejudices come more from their parents than from themselves directly.
17. that DreamWorks makes some pretty dang good cartoons.
18. the Wiggles have much better dancers than the kids on Barney.
19. what the acronyms IFSP, IEP, T&A, ASD, VSD, PDA, SID, BIP, FAPE, OT, SLP, PT, APE and LEA (to name a few) mean.....
20. to do things that are wayyy out of my comfort zone.
21. patience.
22. that my kids are awesome people.
23. to be more comfortable and accepting of all people with different disabilities.
24. that maybe I shouldn't cheer quite so loudly at soccer games :)
25. that sometimes it's nice for your kids to stay small and wear the same clothes two years in a row :)
26. that you can persevere through things that you don't like and are hard (hospital stays and tests) with a smile.
27. there is something new and exciting to learn and notice every single day - and most of those things are pretty simple and we tend to overlook them.
28. that Woody and Buzz are some pretty dang cool toys!
29. toddlers have an amazing knack for learning how to work the tv and dvd player.
30. that some TV shows you said you'd NEVER let your kids watch may have some redeeming value - so much so that you know own all 4 seasons and a music CD of the most annoying yellow cartoon sponge ever created.
31. that there is more going on in your children's heads then you give them credit for.
32. that some therapists are better than others, and once you find the right one to work with your child - they are worth whatever it costs.
33. to celebrate the little things as much as the big ones, because the little ones come more often :) We party over some of the most basic things here at our house :)
34. tattle-taling from a fairly non-verbal child is cause for celebration!
35. some things take a LONG time to learn - patience really is a virtue......
36. out of the blue kisses and hugs are the BEST!!!!
37. organization is important.
38. internet friends are awesome!
39. support comes from all different places, and often when you least expect it, but need it the most.
40. people are generally very accepting and kind.
41. Grandma and Grandpa can bring a smile to Brady's face like no one else (well - except maybe Spongebob :)
42. relatives usually mean well, even when they say dumb things.
43. antibiotics are a gift from God.
44. Lakeshore learning makes FABULOUS learning materials - even if they are spendy.
45. there are so many amazing people who work in the field of people with disabilities - they have so much knowledge and they really care about the people they serve.
46. the squeaky wheel saying - well - it really is true.....
47. the school district people don't like parents who know the law and who study Wrightslaw - they show up at the "trouble makers" IEPs much more often than the "non-trouble makers".
48. Leapfrog makes some really cool electronic toys, and they really are good at teaching things!
49. repetition, repetition, repetition is the key - 100's and 100's of repetitions.
50. baths are more fun when you soak everything in the entire bathroom.
51. playdoh isn't always fun - sometimes it's work - luckily we're back to the "it's fun" again phase.
52. that candy is gross, but glue, playdoh, lotion and hand sanitizer might actually be tasty?
53. it's more fun to take up an entire King sized bed sleeping horizontally, than the regular way.
54. shelves were made to be empty of all books and anything on top of them.
55. tidy rooms are overrated, and the cleanliness of a room can be remedied in 30 seconds flat.
56. crackers from un-opened packages taste better than the ones from yesterdays half-finished package.
57. microwave popcorn is only good HOT, and not palatable after 30 minutes.
58. spaghettios, ramen, mac and cheese, and chicken nuggets really are a staple of a well rounded meal.
59. eating with utensils is more a guideline than an actual rule.
60. Oxyclean and Biz really do work well on stains.
61. those dry erase markers that OT's and teachers are so fond of - don't come out of clothes - even with Oxyclean and Biz.
62. there IS a difference in chicken nuggets between fast food places - the ones you think would be the healthiest are the least preferred, and the ones that are the ickiest - well - they are apparently the best - or it could just be they have better toys at McDonald's.....
63. Disneyland IS the happiest place on earth - and one can apparently ride the rides time after time after time and never get sick of them :)
64. Land Before Time is timeless.....
65. Little Critter rocks!
66. music is the key to unlocking short term memory problems ;) Teach something with a song, even a terrible mommy-made-up song, and it's remembered forever :)
67. appointments with specialists are like appointments with the President - you never want be late or miss them....
68. family is the most important thing!
69. Stride rite makes cute wide shoes ;)
70. things that you used to think were important, really aren't.....
71. the word "retarded" used to mean stupid, dumb, ridiculous - hurts :(
72. always expect the unexpected...
73. so much can be communicated with out real words.
74. I have great kids!
75. that tests can all be negative for something, and you can still have it.
76. never put light colored carpet in a master bedroom.
77. perfection can be found in the least expected places :)
78. true joy
79. selflessness
80. unconditional love
81. responsibility
82. tolerance
83. understanding
84. cameras with fast shutter speeds are worth extra money :)
85. being included means more than just being in the same room as typical kids.
86. anything worth doing takes effort.
87. times goes too fast!
88. resilience
89. to view the world with the eyes of a child
90. finger painting and getting dirty and doing kid things is fun....
91. childhood is short - make the most of each and every day!
92. reality changes every single day - living in Brady's world requires flexibility.
93. be careful what you pray for :)
94. Heavenly Father knows Brady personally and loves him as much as I do.
95. bubbles are motivating.
96. human touch is important.
97. it's hard to be a violet in a world of daisies, especially when the daisies want you to be like them.
98. there unexpected gifts that come from having a child with a disability, and your child is the greatest gift of all.
99. don't worry about things you can't change.
100. God doesn't make mistakes....
101. our family is complete and enriched and blessed because Brady is a part of it......
What has knowing Brady - being part of his bunch - even just virtually taught you?







































